The unusual suspects: Rare disease in everyday medicine Book

Join this distinctive meeting that brings together stakeholders from across all sectors and rare diseases in order to teach and inform those who don’t yet know much about rare disease.

It’s important to hear the patient voice, participants will gain first hand knowledge about the lived experience with rare disease from our remarkable speakers which include patients and advocates.

The primary aim of this meeting is to inform doctors that rare diseases are collectively common and relevant to every medical career. Very different rare diseases face similar challenges, including navigating healthcare which can be alleviated by a medical profession that understands what living with a rare disease means to a patient and their larger community.

The focal point for this year’s event will be communication and inclusivity in rare disease.

By attending this meeting, you will:

• Know that rare diseases are collectively common, affecting approximately 3.5 million people in the UK.
• Appreciate the common challenges that people with rare disease face in their journey to diagnosis and beyond.
• Recognise how rare disease can uniquely impact a patient and family’s mental wellbeing.
• Value the lived experience that expert patients can share with you in order to improve their care.
• Promote the work of M4RD and the Medical Genetics Section.